swiftfox's picture

Hubby

So Tom is amazing.  The best father, husband and provider anyone could hope for.  He took Ethan's diagnosis like a champ with the occasional break down and I was the mess who couldn't keep it together.  Lately though he has been angry.  I read before Ethan was even given his diagnoses that parents go through a grieving process and anger was part of that process.  I've tried to explain this to him but he's not listening.  He keeps saying that I'm not upset I'm angry.  He sees grief as being emotionally upset,  (he's not taking it out on Ethan) he's just being really hard on himself.  He is looking for a support group for dads does anyone know of any?  He feels he needs to connect to fathers like him to try and work through whatever he is struggling with right now.  We found a online group but the link was dead.  Any advice you can give me to help him I would appreciate it.  

sparkle13's picture

ANOTHER DAY IN THE LITERAL WORLD OF AUTISM...

The other day I received a text from my son Connor not long after school had finished.  It says "My wallet is gone, what do I do". Remaining calm,  I ring him and ask him to check his bag and think back to the morning when he got on the bus.  He informs me he has checked ALL through his bag and it DEFINITELY isn't in there and comes to the conclusion that it's been STOLEN!!  Reassuring him I tell him it will be ok, it will show up and that we'll sort it out when he gets home.  Hoping that was going to be  enough to keep him to keep him calm on his bus trip home and not lose it when he walks in the front door.  Later that night I walk past his school bag and think I might just have a "Mum look", which is different to a Connor look,  and double check his wallet is'nt hiding in some little pocket he's forgotten about.  Low and behold what do I find hiding under his scrunched up school jacket but his WALLET!!  Yay!!

jenpay's picture

popsicle

My little brother Riley loves popsicles. Purple is his favorite. He's always asking Mommy for a purple popsicle. When she walks over to the freezer to get him one she always asks, "Eric do you want a popsicle too?" She does this EVERY time. I don't know why, she knows I'm just going to say no. Popsicles look weird. I have no interest in popsicles.

Anyway, a few weeks ago my class went on a field trip to a local park. Mommy got to come too! It was hot but I was still having a lot of fun. Suddenly, my teacher called out, "who wants a popsicle?" All the kids came running excitedly to pick out a popsicle. There were so many colors, not just purple. As usual Mommy looked at me with a goofy grin on her face and enthusiastically asked, "Eric do you want a popsicle too?" I was about to say no when curiosity got the better of me. "Yes," I said and Mommy practically dragged me over to pick out a popsicle. "What color do you want Eric?" teacher asked. So many colors........"orange," I said.

shanesh's picture

Screening App

We have a new posting about our new screening app, to help parents see the possibility of autism or any other developmental delays. You can check it out here:

http://ilearnnearn.wordpress.com/2013/06/05/importance-of-time-in-autism-diagnosis/

jenpay's picture

last week of school

This week is the last week of school. It certainly has been a rollercoaster ride. I think Eric has made much progress over the past school year, so overall I'm satisfied. But I'm also glad eric is done with mainstream school, for the time being. What the past year has shown me is, Eric is not ready for it yet. So next August he will attend a private school, a transitional school. And I couldn't be happier or more hopeful.

Eric has been attending public school. He is in PreK-4 and receiving 30 minutes each of occupational therapy and speech therapy once a week. Pretty skimpy I know but I'm new to the autism game.

Well, all year I've been getting two sometimes three notes sent home each week basically cataloging all the things Eric has done......his mega tantrums, the hitting, undressing himself. Each day I send Eric to school I make sure my phone is close by in case they call, but honestly, I always feel slightly worried....gee I hope he doesn't have a tantrum today, I hope the teacher is treating him well, etc. All these thoughts run through my mind.

I know better now, I learn a little more each day how best to advocate for my son.

ndhenson's picture

Different Family Perspectives

Hi. My name is Nicole Henson. I am currently working on my Masters Degree to get my BCBA to become a behavioral Analyst. I love working with children who have been diagnosed with Autism. They are such sweet kids and I love helping them. I am employed at an elementary school helping children with Autism in the general education setting. I also have a brother who was diagnosed with Autism about 11 years ago. He is such an awesome kid!

For my masters program I am taking a class about how disabilities affect families. I am desirous to learn about other families perspectives on having a child that has been diagnosed with Autism. What were some of the challenges you faced? What were some of the successes you had? Were there certain things you were worried about? What is your perspective on your child's education program? Have you had problems with the educational system? What are some of the joys your child or children have brought you? 

I really appreciate any comments and the time you take to make them! 

 

Thanks!

Nicole Henson

sparkle13's picture

HAIR SURGERY...PART II

Well it's Friday morning and Kyle has reached his much anticipated day of HAIR SURGERY!!  As previosuly mentioned, this is Kyle's second hair cut/surgery in nearly 13 years at a hairsalon. Hoping to make it a positive experience I first give our hair surgeon a heads up on our anxious patient.  Second, Kyle and I google "short haircuts for boys" and peruse the many photo's of Taylor Lautner, Paul Walker and, of course, One Direction.  After a while he settles on a style which is short at the back and sides and has a longer fringe that sweeps across his forehead...nice.  Armed with our photo and a detailed shcedule of how long it takes to get to the hairdresser, how long we will be there and that we are coming straight home after it, we head off for SURGERY.  As my nervous patient walks in to the hairsalon our surgeon is waiting and with a very sloft voice she greets him and looks at his photo.  After 20 minutes of hair surgery, 5 minutes of straightening his curls and 1 minute of product application our anxious patient walks out a happy chamption.  HE SURVIVED HAIR SURGERY!!  Feeling like he belongs in One Direction my little champion walked out of the hairdressers feeling pretty

jibarra's picture

Your Perspective

Hello all! My name is Jesika and I am currenly a Behavior Analyst working with children diagnosed with Autism and other developmental disabilities.

 I am dilligently working towards my Masters in Education along with my BCBA in hopes to continue to make a difference in the lives of the children I am so blessed to work with.  I am currently taking a course on Family Perspectives. I am hoping to expand my knowledge about the needs, feelings, and experiences of family members in families of children with disabilities.

 If you find the time, I would LOVE to hear what is on your mind. What are your biggest concerns regarding your child with special needs and the rest of your family? What are some trials and triumphs you experience as a family? What is your overall view of the school system? What you like/what you don't like? If you have typically developing children, what differences do you see in their support system at school versus your child with special needs? Again, I would love to hear what you have to say and  learn from your experiences.

Thank you,

Jesika I.

jenpay's picture

success!!

I'm happy to report that I'm making progress with cutting Eric's hair! He now lets me trim his hair while he plays Pac-Man. Only a little bit at a time though. His daddy has to sit close by with an arm around him for support, but he actually lets me do it....no freak outs, no screaming, no objections, he cooperates....for the most part. He won't let me cut the hair near his ears and he cringes and pulls away a bit when I trim the hair at the bottom of his head near his neck. I only use scissors too, no clippers... he won't stand for it. And when he says,"okay that's enough," I stop.

Phew!! Took hard work and a lot of patience just to get here. We still have a way to go, but I'm pleased. No more trying to cut his hair while he sleeps at night!

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