I just received a phone call from one of my son's respite workers that our son Chris is having a difficult time. He is in a group home 2 1/2 hours away. He has three other house mates that live in the group home. As it turns out all three of theses guys are able to leave the house on weekends which leaves Chris alone with staff. He really does what to be home with us and does not understand that because of gas prices we are unable to visit or bring him home for a visit as often as we would all like. Some of the staff understand and try to get him out with activities while others just sit at home with him. He loves hardware stores and that is one of the rewards that he gets if he has good behavior. Since this change with room mates his behavior has escalated and now he is stuck in the house. I feel very sorry for our son and have tried to communicate with staff that they are setting him up to fail. Chris gets very bored and that is when things get out of control. It is just so hard to parent from such a distance. We would like to get him closer to home. The group home is not the issue but the day program. Chris went through 5 day programs here and sorry to say his history followed him and people just wouldn't accept him. To parents some times people see stuff on paper about our kids and that follows them forever.



Things always seem to boil
Things always seem to boil down to money. Would it be cheaper for you guys to visit his town and all stay at a Motel 6? Could you move? Could you get a more fuel efficient car? Could you wangle a new psych evaluation and use that to get him in a program closer to home? Are you still on those waiting lists for a closer group home and day program? Could you put an add on the net/paper for someone (an understanding commuter or another parent of a Special Needs person maybe) to drive Chris one-way? I'm sure you've thought of all these possibilities.
We're kind of in the same boat trying to research summer camps for the future. (We would like to enjoy part of our vacation without our son). The big hurdle seems to be potty training. Well, money also. Everything is boiling down to poop and money. Lovely!
Thanks Yes we have had staff
Thanks Yes we have had staff bring him home. They have funding for 3 times a year. We have visited him as well and working on a week at home visit next month. It just seems so hard for him to reajust after a visit it makes it hard for the staff to settle him down. The poop issue will get better with time but don't know if the money one will for any of us Good luck Jeni