Advocating for your Autistic Child

Renee Miller's picture

When we were approached by the school district to have Maddie assessed for Autism/PDD I was extremely defensive. I did not want to label her, especially at 4 years old. Nor did I want the school district telling me what I needed to do for my child. Finally I thought, I will go through the normal kindergarten screening process and go from there. Well the screening went poorly she was so afraid of the person doing the screening she didn’t even participate. That’s when I figured how is she going to let a teacher help her in a classroom and decided to go through the formal assessment process with Fraser Child and Family.

Once we got the autism diagnosis I took the recommendations from the assessing organization and started therapies. I also met with the school right away to start lining up the support that was recommended by the assessment. I was in control of what was happening at each step. This was very important for me to be the one “steering the bus”. I recommend that you learn the strategies and techniques that work with your child so you can let others, especially the school people, know how your child learns best. I am planning on teaching Maddie how to be her own advocate down the road so she will be able to tell others how she learns things the best way for her. The more I empower her the more she will become an “over comer” and find things on her own to be able to manage her autism. I recently read an excellent book by an Autistic woman named Dawn Prince-Hughes PH. D. called Songs of The Gorilla Nation about how she learned to advocate for herself and live with autism.

Dear Renee: Thanks so much

Suzanne Bancroft's picture

Dear Renee:
Thanks so much for taking the time to help others. It is truly appreciated. I am writing because I am the Aunt and caregiver to my neice Marissa. She is 8 years old and is currently placed in an Aspergers classroom. This placement is causing her so much distress and this has been ongoing throughout the school year. We have asked the school district to amend her IEP to include a shadow for the balance of the year and to stay with her as they will have to change her school yet again next year. (she has been placed in a different school every year due to the fact that the school district does not have an appropriate class for her diagnosis which is PDD-NOS) Marissa is very high functioning and I believe she would be fully capable of learning and becoming independant. The school district and the IU group assigned to Marissa are dragging their feet and are not very helpful in getting her in to the correct classroom. Is there anything we can do as advocates to assist Marissa in finding the right classroom? Is there a legal group that you might know that could help us in our plight? I am fearful that Marissa is regressing due to the fact that she has been in the wrong classroom all year. Can you offer any suggestions? Thank you,
Suzanne

New Step Parent of an Autistic Child

Rebecca's picture

I am a new step parent of an 11 year old autistic boy. I am pleased to find your blog! It’s been difficult to find helpful suggestions for an older child. How old is your daughter?