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Anonymous's picture

Still Struggling

We are still struggling with the cold and sty's.  Poor baby is miserable.  That said, we have had a breakthrough.  He is now able to put his socks on by himself.  I just need to adjust them so that the heel is where it should be.  He is also almost independent with putting his shirt on.  It won't be too much longer and I think he will have that down.  Yeah!  He has a hard time with taking his shirt off.  When you think about it, getting your shirt over your head is complicated. 

Dean is working so hard to become independent.  He has decided that he wants to do things for himself and that has been leading to a lot of breakthroughs lately.  He is so smart and stubborn.  I am so proud of him.  To accomplish everything he has at his age, with his challenges, is amazing.  There has been a lot of things he has began to do that we once thought he would never do.  But as we all know, never say never.

parentingautism's picture

Build Inclusion

Over the last year I had been able to talk to adults on the spectrum through the Vermont Autism Plan steering committee; I sat-in on public forums for adults and read countless interviews of adults along with surveys we spent out to families, adults, and professionals. I became interested in what adults with autism thought might have helped them prepare for adulthood and what would help them now. Late winter, last year I leaned against a white wall in the basement conference room of a county mental health agency listening to adults with autism tell me and two other members of our committee how they wished their parents understood them more and how they are outcastes of our society. Tears rolled down my face as the men (this forum only had men on the spectrum) recapped their life and how now they don’t work, play, or have relationships and I thought it was time for a change, time for all people to feel included.

parentingautism's picture

Spiraling Down

In these unpredictable economic times, I pondered the question, how are families with children with autism paying their bills and providing for their families? I asked families all over the country to email me to telling me their stories of surviving the economic down-turn. In no way is this article a scientific evaluation of family income or lifestyle, just an overview of what is plaguing our country.

According to the 2000 Census report more and more families rely on two incomes to stay in the middle class and what my interviews uncovered was that families with kids on the spectrum often don’t have two full–time incomes due to caring for their child. Before the age of three it is often difficult to find and retain appropriate childcare for children with autism and then after the age of three your child should receive services through your local school system, but usually not enough time for a full-time job. Along with the intensive caring and re-enforcing behavioral therapies, many parents are their child’s case manager — dealing with doctor consults, educational programs, and home therapies which results in many meetings, emails, and phone calls every month.

Anonymous's picture

Good and Bad Day

Today has been a good day and a bad day.  My son is sick and he has 2 sty's on one eye.  Poor baby is in so much pain from them, his eye is all swollen.  He also has a head cold.  I took him to the doctor and he is on medicine for the infection(the sty's are infected) and he has to be out of school all week.  He is in bed early tonight, so I will probably be getting up in the middle of the night.  I really don't see him staying asleep the whole night.

The good part of the day, is that I had a meeting here at the house with his Case Manager and CAP service provider.  He has met some of his goals, so we were able to add some new ones.  We were also able to adjust some of his current goals that he has made progress with.  We have a long way to go, but it is nice to see him making progress. 

WyattsMom's picture

Maturity Levels and Things

Have you ever known someone [nuerotypical] who is age 40 and acts 12? It's really not so unusual. Sometimes I notice that my ASD son, though almost 5, acts somewhere between age 2 and his age.

There is a theory out there, one of maturity. This theory is the theory of plus or minus 5 to 7 years. Say you have two 12 year olds. One twelve year old may act more like a 7 yr old, and the other 12 year old may act like a 17 yr old. One you would definitely supervise, the other you might have babysitter younger children. I guess what I'm trying to say is that there is such variance in the so-called nuero-typical population that we should keep in mind when we feel despair over how far behind our ASD kids seem in their challenging areas.

Anonymous's picture

Music for Kids with Autism praised by Tony Attwood and Carol Gray

Rivanna Music: Creating Tunes that Teach

http://www.rivannamusic.com

 

MY TURN YOUR TURN: Songs for Social Skills
My Turn Your Turn, the seventh CD from award-winning singer-songwriter, Cathy Bollinger sparkles with thoroughly singable songs that gently address the needs of children who find social interaction confusing or challenging. Using descriptive, social story-like phrases to talk about concrete situations, My Turn Your Turn sings children through the tricky territory of engaging with others. Songs touch on

Cindy's picture

IF YOU'RE IN TEXAS......

you can save some big money on car insurance. I just saw this on the news. Even if

you're not in Texas you might wanta check it out because they mention on site how to

get your state to do the same thing..... 

https://www.milemeter.com/faq#q1

It's coverage by the mile =)

Anonymous's picture

Need Help with Articles

I am a mother of a 9yr old boy with Autism.  I have a website that I have a page dedicated for Autism info.  I want to add another page for families with a child with Autism.  Each week, I would like to feature a different child.  I believe the more stories people can read about us, the better.  We are not all the same.  Our children and our experiences, although similar in areas, are also unique.  Our daily struggles and our triumphs make us who we are.  If more people understood who we all are, instead of just the celebrities that are shown on t.v., the easy things might be for us and our children in the future.  If you are interested in sending me an article or a short blog to post on my site(a picture can be posted too if you like) my email is tammy@learningfelt.com and my website is www.learningfelt.com.

I can also post a link on my site after the article to your website/blog.

Thank you.

Anonymous's picture

Autism on the Seas

"Autism on the Seas" is dedicated to servicing the cruising needs of families and individuals faced with autism.  We provide Group Cruises for a vacationing experience that is unmatched, and an "Autism Cruise Package" for those individuals and families who wish to cruise on any date or ship of their choice. 

Some of our services/features include:

Anonymous's picture

Resilience

Autism is a way of life. Perhaps resilience is the only description that makes sense of our perspective as parents. What is more compelling to me is that resilient also describes my son who happens to have autism. Without his tenacity and "sticktoitive" nature, our mission would be very much skewed. I also write under the name of resilientmom for Revolution Health. Our journey has been a remarkable one, stocked with peaks and valleys. I repeat, autism is a way of life. We are seasoned veterans as our son is 21 years old. My one vision for all families effected by autism, is that they share and support each other. Whether it is friend, religious or family support it is an amazing source.

I am available to answer questions based on my experience as a parent of autism.

Regards,

Robin

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