I am so sorry that you have to deal with this extra hurdle in your life :( Did Susan Baker give any sort of diagnosis, such as PDD-NOS? (Pervasvie development disorder not otherwise specified). Is there an appeals or second opinion process? Can you call up SSI and ask for a supervisor regarding that MR waiver? Maybe there are other "waivers" or maybe you don't need a waiver, maybe you could qualify on income alone? Are you sure that High Functioning Autism doesn't qualify for SSI? Anyone else reading this, do you have any insight??? I can't believe the system is letting Michael fall through a crack!
Don't feel selfish! Everything that you are working toward is for Michael. You were just looking at one way to accomplish a goal, but you may need to take another path, that's all. It's not that you hoped he scored low, not at all! You know what is in your heart.
If there is anything we can do, I don't know, like ask around on some autism Yahoo groups or other blogs or make some phone calls or something, let me know! Maybe someone out there will have some good suggestions. Meanwhile, hang in there!!!
There are children who have
There are children who have ADHD and get SSI. But I have no idea where else to go. I know most states require the waiver to be approved before SSI can be approved. Michael actually sees a nurse practioner who oversees everything... I see one of my workers on Monday who may have some ideas. And then I see Barb on the 5th. I just need to step back and try to breathe I guess. I was just really torn up since the meeting. I was depending on this to go through and Michael had great days with Sadah so that helped him score pretty high. I want my baby to be smart, but I do not have the means to get him the help he needs to really excell.