Molly

big stovie's picture


Molly

Hello 
My name is Matthew  
My little sister is a very high functioning autistic
21 year old woman. She is a bagger at the local
supermarket and has done very since starting less than
6 months ago. In my view she has even more potential
to enjoy an independent, fun life. She has always been very attracted to
Japanese culture and music. I have repeatedly tried to
encourage her to learn the language (to no avail).
Over the last 3-4 years her obsession has increased 10
fold. I feel like she is so psychologically strong she
now endures all social interaction completely waiting
for her time on the computer watching Japanese music
videos and music. My parents have endured the most and
seem to have settled for this type of lifestyle for my
sister, I on the other hand see this as an addiction
completely enveloping my sisters mind and personality.
I have encouraged my parents to remove all electronics
and see what other types of interaction might arise
from her. My parents understandingly say it is an
escape and outlet for her to relax and enjoy herself.
I understand this as well but have seen her
personality and relationships (especially with my
Father) suffer almost to a non existant state. I
always wonder how she would be if we were living prior
to electronics and computers, I believe she would be
very more interacting and relational, as she was prior
to this recent obsession. I would love some feedback
or any contact information of someone I could speak
further with. Any help would be much appreciated 
I just see alot of potential in my sister and see this
one aspect taking her away from all people around her.
 I really feel like help and information especially for me and my parents is much needed.
I think knowing how to learn to prepare Molly for the future should be the priority and I feel that my parents are getting worn out and don't know how to implement new approaches toward being involved in Molly's life. 
Feel free to contact me with any help or information
Thank you 
Matthew
stovie23@yahoo.com


Well, one thing that you

WyattsMom's picture

Well, one thing that you could do is help her find some Japanese friends locally? I went through a time when I was absolutely fascinated with Asian cultures and I took a lot of Asian Studies courses. For a couple of years, almost all of my friends were Asian. It just happened naturally. But then I began to encompass other interests as well.

Years later, I was able to go on a trip to Japan, a wonderful two week trip at the end of 1999. My best buddy just happens to be married to a Japanese-American guy who has a lot of family over in Japan. Some of my friend's contacts and relatives were VIP's. One was a former sumo wrestler--basically, a famous and wealthy person--who had a gorgeous house in Tokyo. That man cooked us a fabulous dinner of shabu shabu (I'm not sure I spelled it right) which is thinly sliced boiled beef. He didn't have a table large enough so he removed a door from his house so we could all dine together. His wife worked in the sumo gift shop and gave us a huge box full of tea sets and other ceramic samples. To get them onto the airplane I had to put all of my clothes in a cardboard box and then pack the breakables in my suitcase and strap the cardboard box on top of the suitcase.

Other relatives were Buddhist priests. We actually slept on temple floors some nights. Others were wealthy businessmen who had their own drivers and took us to very fancy multi-course meals in hotels or very exclusive tiny restaurants with only a few tables. And there were two relatives with their own museums. In Japan, if you are wealthy and you enjoy a hobby, then you create a museum in your home. One museum was of tea ware and the other was a cooking museum dedicated to the soba noodle (buckwheat noodle). That man made us an entire soba noodle lunch from scratch as a demonstration in his professional grade kitchen.

We enjoyed nightlife, fish markets, fire works, hot springs, etc. We gave little gifts to everyone we met. It is a very gift-oriented culture. I had brought lots of boxes of chocolate from home. On New Year's Eve, a friend took us on a really long and packed subway ride out to the beach. It is one tradition to be at the beach as the sun rises on New Year's Day to make a wish. And also to visit a temple and receive a fortune on a little slip of paper. Then you hang it on a wire with everyone else's wish, for good luck.

Anyway, seeing the Japanese culture in a new way might help your sister see that the Japanese culture she views through videos is only one VERY small part of a Japanese world she already loves. If she saw more of the Japanese culture and actually had a chance to truly speak a few words of Japanese in a real life setting, well, maybe she would enjoy that. P.S. Take her to karaoke nights.

Thanks for your reply She

big stovie's picture

Thanks for your reply
She actually tentatively suggests a trip to Japan (which I have really tried to encourage)
I do think it would be very helpful to have her see the culture firsthand.
We'll see
Thanks again

There is an old saying that

Perz's picture

There is an old saying that I'd like to flip around a little to make a point here - "You can lead a horse to water, but should you force it to drink?"

Your sister seems to have come a long, long ways in overcoming her disability and, no doubt, she has developed some habits that she finds relaxing, consoling, etc. that don't coincide with the way you run your life. However, she is an adult now, and has she not earned the right to lead her own life? Or must she lead what YOU think is the ideal life for her?

To become more involved in her life, you (and your parents) have the option of becoming more interested in the things that she is interested in. In other words, YOU can move towards her rather than insisting on always "pulling her" towards you and your world. You can always invite her to participate in other things, but forcing her by removing her electronics seems extreme to me.

Perhaps Japanese is something that Molly would really like to learn, but perhaps her difficulties with communication (associated with her autism) preclude her from effectively learning a second language in a classroom setting... so, perhaps YOU can take the classes and then find a way to teach her the language in a manner adapted to her abilities. Have you asked her how she might feel about this?

Perhaps she's withdrawing to her electronics right now because she's avoiding communciating much with people that just want to continue to mold her into this "normal person" image you have instead of just appreciating her for the wonderful person she already is. Many people with autism resent the idea of "curing" them because they feel that this equates to erasing who they are.

BTW, welcome to AB.
Perz

Perz Thank you for the

big stovie's picture

Perz
Thank you for the reply.
I have always appreciated Molly for the amazing woman she is and I really try to get involved in things that she is attracted to. I have just been discouraged in the last few years with the availability and opportunities for social interaction. Over the last few years the opportunities for social interaction and developing relationships have become fewer and fewer, and I see other things like Computer time replacing valuable interaction with people that really care about her. We, her family want to find ways to interact with her and keep our relationships with Molly strong, while helping her prepare for (what I think is feasible and important) independence.
Thanks again for the reply
Any and all comments are much appreciated
Matt

Hi again Matt, I'm sorry if

Perz's picture

Hi again Matt,

I'm sorry if I misunderstood you. Your initial post really didn't mention whether or not you were making any attempts to become interested in Molly's cultural interests beyond recommending that she take Japanese language lessons.

Yes, I agree that after high school there are fewer and fewer opportunities to make friends. This is true of NT's as well as people with autism, with the one possible difference being that NT's tend to carry forward some strong friendships from school through adulthood so as their core group of friends disperses they tend to make new friends through their friends of friends.

My own son (now 20) has emerged from school without such close friendships to fall back on. He has tried on several occasions to organize recreational outings of various types by inviting people he has known somewhat through school, but these individuals have consistently refused his sincerest efforts to be friendly with them. He finds making such attempts very stressful and each time he winds up being extremely hurt when no one shows up. Alternatively, I have suggested that he join several clubs, so far without success. However, it is understandable that he fears being rejected by these groups as well. I'm sure he will eventually join something, but it will only be when he feels comfortable enough to do so.

Although I agree that the internet is a less than desireable substitute to human contact, it is a place where my son can at least find some people who will converse with online at any time of the day or night; and he is fairly comfortable communicating with others online. I also find that I can often draw him into conversations about his online activities far easier than I can sometimes get him talking about other aspects of his life. It is at least a starting point and I don't think that taking this comfort zone away from him would have any positive effect on his efforts to socialize offline. Indeed, without such an outlet, he may be left more vulnerable to depression.

So, if I were you, I would rethink your idea of taking your sister's electronics away from her in order to force her to socialize more with you and your parents. I would persist with inviting her regularly to join you in your activities and I would create opportunities for joining you in activities that are geared towards her special interests. Although it may not happen as frequently as you would like it is far better if she joins in social activities willingly and comfortably rather than only because she feels "cornered" into doing so by the removal of something she does obviously enjoy.

Although my initial response probably did not make this clear at all - I do applaud your concern and obvious love for your sister. My son is an only child and I sincerely wish he had a sibling that cared for him as much as you obviously care for Molly.

All the best,
Perz

Right on Perz!! I say take

Cindy's picture

Right on Perz!! I say take her to a Japanese restaurant..., buy her a kimono. "Normal" is kinda boring if you
ask me =)~~~