Frustrated.
I am so beyond frustrated with where we are right now. Since Kaden turns 3 on Saturday, he can't receive services until he offically falls under the DDD umbrella and is not under the AZ Early Intervention one. AZEIP only serves kids under 3, while DDD claims that they can't help till he turns 3. Neither one of them want to give us services for at least a month. So here I am with my autistic child who was unlucky enough to be diagnosed at an in-between time and not receiving services. I am just so incredibly sick of the games DDD plays. Not only that, but to get Kaden involved in Jump Start at SARRC, they won't even sign him up until I give them a $125 deposit. OH OK! LET ME PULL THAT OUT OF MY ASS! DDD told me that "they know it is hard getting services started up, but by December, we should be in a routine with services". DECEMBER?!@?$!$#
I am angry ALL the time. I know it isn't healthy and I am really trying to make more of an effort. It just seems that Kaden has the worst public temper tantrums when I have already reached my limit. I know Kaden is smart, I just wish we had some therapy to enhance his intelligence. I want so badly for him to progress. I used to be sad every day, but now I am just mad. I'm mad because I feel like I have done everything in my power to ensure my son is safe and healthy, but look what happened. I see horrible parents who drank and did drugs throughout their pregnancy that have normal children! Please don't get me wrong, I would never wish anything ill on any child, but I am frustrated. I have tried talking to friends about how devistated I am over his diagnosis, but I get the feeling they really don't care. After all, it isn't happening to them. To their child.
For now I guess I will continue to play the waiting game. Waiting for DDD. Waiting for long term care. Waiting for the special needs preschool to get back to me. Waiting to come up with money to get Kaden through Jump Start.
On a lighter note, one really positive program that has really been helping me is Raising Special Kids. They were absolutely wonderful.
Maybe something will come through soon.
- Kaden's Mommy's blog
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Comments
Try to remember that for most
Try to remember that for most of us older autistics, we didn't recieve any services at all. Heck, I was 26 when my specific disorder was finally mentioned in the DSM-IV, and 30 when I was diagosed.
Services can help. But what helps a lot more is having a family that supports the autistic, is willing to do those things for him that he is incapable of doing for himself.
Automation and technology can also help greatly.
Services are NOT the only thing that can be done.
Want to give Kayden a head start? Start with his bedroom. Find a way to make it truly a retreat from the world for him; with all of his favorite games and toys in it. Change the lighting so he can adjust it. Add a radio or white noise generator that he can control the volume on. Give him one place in the world where he is actually in control.
It is amazing how much just having one small bit of privacy, one small bit of sensory bliss instead of sensory attack, can help prevent those public meltdowns from happening in the first place.
Thank you, Seebert. Your
Thank you, Seebert. Your insight is always so helpful!
At Lauren's Institute in
At Lauren's Institute in Gilbert, AZ, we have had youngsters as young as 18 months be qualified for services so I am curious as to what roadblocks you may be running into with DDD?? If you would like us to see if we might be able to get more answers for you, please just let us know. I can't promise anything but we would be more than happy to see if we can help you in any way.
At Lauren's Institute in
At Lauren's Institute in Gilbert, AZ, we have had youngsters as young as 18 months be qualified for services so I am curious as to what roadblocks you may be running into with DDD?? If you would like us to see if we might be able to get more answers for you, please just let us know. I can't promise anything but we would be more than happy to see if we can help you in any way.