My first Entry

cymeid's picture

Okay so let me start by thanking the sight for allowing me to become part of a wonderful world surrounded by my peers.   My name is Corienne Meid,  known as Cori for those closest to me. I am the mother of an eleven year old, high functioning child who was diagnosed with Persuasive Developmental Disorder  or PDD-NOS  and a tic disorder that has yet to be classified.   My husband and I are both in our very early thirties. Dustin , my husband,  was diagnosed with a rare kidney disorder and they failed a few years ago.  He is currently waiting on a transplant and does peritoneal dialysis for nine hours every night.  My daughter, Reine (pronounced Rain), is ten years old and probably the most educated medically in her class.   She can change the dialysis machine, and do insulin with out batting her eyes.   Definately a special gift from god sent to help me on this bumpy journey of life.   She however deals with scoliosis and lots of back pain.  Amazing she hardly ever complains.    I, myself have been battling blood pressure and heart issues for a few years.   Last year was diagnosed with diabetes.  

     Anyway, back to the task at hand.  My eleven year old hasnt responded to well to medications.  After trying over ten different types and combinations we have settled on Respiradol and Clonidine.   The clonidine scared me at first because my husband takes that and has a hard time staying awake.  It made me very nervous to give such a strong pill to my son.  However after ten years of getting less than three hours a sleep at night, clonidine has become my new best friend.   Night terrors are rare now, he sleeps all night and doesn't seem like a zombie during the day.   I love it!   read more »

Constant noise making

dawnydark's picture

My son is into Icarly right at the moment and already has seen all the lastest episodes and has them memorized word for word. This is what he goes around the house saying almost nonstop unless he needs something like food or help with somehting. I was wondering if any of you out there have the same thing going on with your kids and how do you if you can get them to stop it? My husband is about to go crazy over it and me sometimes worse than others. His answer is just to get some meds but what I keep telling him is right now with SSI one month we have medicaid and one month we dont and cant afford anymore meds right now. We have tried some meds on him in the past and all they seem to do is make him not eat and be more emotional. I have appliled for TEFRA and waiting to hear back.

Growing Up with Autism

CandacesJourney's picture

Many days and years have passed on her journey.  There is a need for transition and entering the adult community after this year. A correct fit need to be accomplished.  How she can live in a Messie World that always does not understand her autism.  She would like to live with her Grandma forever, she has much to offer and wants to work with children in daycare.  Which state would offer programs that would help with that entry.  (Grandma is already blogging and writing about our journey together at www.rewiredat75,com)  I really need some help in finding the right fit for life.  I have been in the RDI program and am learning much about "getting it" with friends and family.  I am sometimes confused about this growing up stuff.

Autisic Children's Activity Program...ACAP

John H.'s picture


The Story of ACAP

Once upon a time there was a group of

parents whose children were considered

“different.” These kids had autism.

During the summer, these parents didn’t


want their children sitting idle. They sought to find


summer camps for their kids. But their children

didn’t fit into a typical camp mold. There was

debate and discussion over what they would do. They

were looking for a place where their children could

have fun, make friends, experience their community,

learn and thrive. These parents then got together

and decided to create their own camp.

The Autistic Children’s Activity Program was born,

which became commonly known as ACAP. Every

 read more »

Peeled, Organic Pear Juice

bettyagogo's picture

Hi Everyone!

 My small start-up has created a peeled, organic pear juice that is made for families on food-restrictive diets.  We're made better (hands-down) than all the other pear juice companies out there.  This is because our manufacturing process does not use any processing aids that are traditional to the industry.  

 Plus, we use only ripe, peeled, cored and de-seeded pears. So, if you're on SCD (Specific Carbohydrate Diet), Feingold, of Low oxalate/phenol diet you'll definitely want to check us out....

 www.gogojuice.com

 Let me know what you think of our first product! Thanks everyone!

Betty - the mom in charge @ gogojuice

any ideas?

momof2alienboys's picture

Alex is my beautiful goodlooking son. He is 5 yrs old and has PDD_NOS. He is on siezure meds and vitamins for his anemia. Well, he is also on Clonodine for sleep! THE PILLS HAVE WORN OFF!!!! Why does my child only need 4 hrs of sleep for 2 DAYS!!!!!???? Why am I too old to stay up with him???!!!! I feel old and tired. Does anyone have any ideas? I've tried sleeping with him,BUT that is too hard on me! He kicks hard! He doesn't like music or noises. I just recently had surgery, and my car is a standard so drives are hard. He eats like a nobodies business. Now I see, all the HBO and STARZ movies about autism are on LATE!!!! I won't even ask about potty training until next blog.....lol.....Thanks every1

this too shall pass...

momof2onspectrum's picture

God help us, Aspie is experiencing some 'plumbing' problems; ie. - he feels like he has to pee all the time.  While we are trying hard to work this out with the urologist, it is causing him a GREAT deal of mental anguish in the meantime.  Today, I took him to the Va Science museum (a favored activity) to try to take his mind off his troubles.  We worked our way thru the museum with sort of a pattern - he would say: "I'm trying my best, but I just can't take it anymore!  read more »

Clay Bath

rcaveda's picture

Has anyone heard of the Clay Bath?

I've heard that between the Clay Bath and the Chelation, the best have been the Clay Bath. It has shown fast results. I've also heard that the Calcium Bentonite Clay is one of the best one.

I have a 6 1/2 yrs old son. He's autistic and is developmental delay. He's presently on meds and is taking Intuniv 1 mg, 2x's a day. I would like to know if anyone has experiences these bath or the Chelation while the child is on meds. Are there any side effect?

My son is a very hyper kid, one of the reason why he's on Intuniv is because of his hyperness. I'm just afraid if I give him these Clay Bath would it get him very hyper afterwards?

 Any info. would be greatly appreciated.

Thanks

Time to share

Kisster's picture

As I am typing this, my daughter sits behind me in my computer chair. She's "hmmmm'ing" and saying "yummy yummy yummy yum prezzel", and then proceeds to climb over my shoulder to grab a pretzel from her bowl, which she sucks the salt off of and throws away. She'll be four at the end of the month, and while she is still developmentally behind her neurotypical peers, she has made huge strides in the last year.

November of 2009 she was officially diagnosed with Autism, which wasn't a surprise to me at all. I first suspected she was different around the time she turned a year old, when she started lining her toys up and stacking her books just so. She also didn't make eye contact. At the time, instead of saying something to anyone, I told myself I would keep an eye on her for 6 months and see what happened. We considered her quirky and maybe a little OCD. 

After 6 months, she had gone from saying 10 words to only saying 5 words. The hand flapping also started, and her lack of eye contact was more noticeable. She seemed to prefer playing by herself and would seem extremely uncomfortable around large groups of people. Feeding her was tough because she seemed to dislike everything. Her pediatrician noticed the lack of eye contact and questioned the loss of language, deciding to see her back in 6 months to see if there were any changes.   read more »

She Doesn't Think He Needs Fixing. Autism Support Jewelry by allison strine designs

allison strine's picture

THE STORY
Autism spectrum disorders affect 1 in 150 individuals nationally. This print is to remind us that kids on this spectrum need understanding, not "fixing".

THE DETAILS
This piece of jewelry is made to order just for you, using the highest quality lead free solder and a sterling silver jump ring. Sandwiched with love inside two pieces of glass is a long lasting print of one of my magically delicious collages. The dimensions are about 1.25 inches square-ish, or 3.2 centimetres-ish.

THE PACKAGING
Your LadyBird will be pillowed on a bed of white fluff, and lovlngly boxed in a brand new jewelry box. A colorful jewelry care card is included. It's a gift - for yourself or someone you love!

THE QUESTIONS?
Email me at allisonstrine [!at] mac.com

THE PAYMENT OPTIONS
Paypal is easiest, but there's more! I'm happy to process credit card payments over the telephone or send invoices via Google Checkout. I accept Visa, MasterCard, and American Express. Such a deal!

THE GLEE GUARANTEE
I want you to be happy to the moon and back! If for any reason you aren't in love with your LadyBirds, contact me. We can work it out!

THE BORING PART
This illustration is copyright Allison Strine 2010. Copyright is not transferable with the sale of this print. The buyer is not entitled to reproduction rights. Not no way, not no how.

THE LINKBACK
See more SUPPORT 'Birdies here:
http://www.etsy.com/shop/allisonstrine?section_id=5026506